For Bella Marin and her mom, Frances, Bella’s VEDS journey is a road traveled hand-in-hand. “I really don’t think I would have made it this far if it wasn’t for her,” Bella says of her mom. “She’s ...

The Marfan Foundation has awarded seven new research grants totaling $750,000 to support innovative approaches to understanding and treating genetic aortic and vascular conditions. The studies explore ...

It’s been nearly 40 years since David Barnes last ran a marathon. In his 20s, he completed the Chicago Marathon twice and the New York City Marathon once. Now 66, he’s returning to the streets of New ...

The Marfan Foundation and its VEDS Movement division have a longstanding history of supporting research that advances scientific understanding of vascular Ehlers-Danlos syndrome (VEDS), including VEDS ...

VEDS Movement community member Isabella shares in first-person why the V matters to her to raise awareness during VEDS Action Month. The V matters to me because living with vascular Ehlers-Danlos ...

For Bella Marin and her mom, Frances, Bella's VEDS journey is a road traveled ...

“Bella had a way of making people feel as though they were the only person in the world when she was talking to them,” said her dad, Peter Welch. She was deeply sensitive and caring, a careful ...

Thanks to the generosity of our community, the Marfan Foundation is able to power world-class research and convene scientists to move us toward new breakthroughs, better treatments and hope for a ...

Thanks to the generosity of our community, The Marfan Foundation is convening Science in Spain, a worldwide scientific meeting with the goal of moving us toward new breakthroughs, better treatments ...